70 Best Cystic Fibrosis Blogs and Websites

1. Cystic Fibrosis News Today

Cystic Fibrosis News Today is a digital news publication dedicated to offering comprehensive daily news coverage of CF. Read the latest Cystic Fibrosis news and articles. Stay informed about approved therapies, new medications and developments to treat CF.
cysticfibrosisnewstoday.com
Facebook Followers 22.7KTwitter Followers 5.2KInstagram Followers 9.1K Frequency 2 posts / day Since Apr 2014 Domain Authority 51 Get Email Contact

2. CF Roundtable A Newsletter for Adults with Cystic Fibrosis

The purpose of USACFA is to provide a source of information for CF adults regarding the basis, nature and progression of the disease, as well as the latest treatments and research to fight it. It also offers a forum for CF adults to communicate with each other. Our many columnists provide insights on a wide variety of subjects related to CF.
cfroundtable.com
Facebook Followers 2.3KTwitter Followers 971 Frequency 1 post / month Since Mar 2011 Domain Authority 28 Get Email Contact

3. Cystic Fibrosis community

A worldwide Cystic Fibrosis community combining cultures, nationalities and age groups. The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high-quality, specialized care.
cysticfibrosis.com
Facebook Followers 233.8KTwitter Followers 31.4K Frequency 7 posts / year Domain Authority 34 Get Email Contact

4. The Frey Life

We are daily vloggers on Youtube sharing this crazy journey called life with all of you. Laugh with us. Cry with us. See the world with us. Get a glimpse of life with Cystic Fibrosis. Be encouraged as you watch our videos... we hope they make your smile and and bring joy to your day. Welcome to THE FREY LIFE!
youtube.com
Facebook Followers 112.1KTwitter Followers 7.1K Frequency 2 posts / quarter Since Mar 2014 Get Email Contact

5. Cystic Fibrosis Trust

The Cystic Fibrosis Trust is the only UK-wide charity dedicated to fighting for a life unlimited by cystic fibrosis (CF) for everyone affected by the condition. Our mission is to create a world where being born with CF no longer carries a death sentence, when everyone living with the condition will be able to look forward to a long, healthy life.
youtube.com
Facebook Followers 88.5KTwitter Followers 27.8K Frequency 1 post / week Since Oct 2008 Get Email Contact

6. Cystic Fibrosis Canada

Cystic Fibrosis Canada is a national charitable not-for-profit corporation committed to finding a cure for cystic fibrosis (CF). We invest more in life-saving CF research and care than any other non-governmental agency in Canada.
cysticfibrosis.ca
Facebook Followers 19.2KTwitter Followers 6.4KInstagram Followers 6.6K Frequency 10 posts / quarter Since Apr 2016 Domain Authority 53 Get Email Contact

7. Journal of Cystic Fibrosis

The Journal of Cystic Fibrosis is the official journal of the European Cystic Fibrosis Society. The journal is devoted to promoting the research and treatment of cystic fibrosis. To this end the journal publishes original scientific articles, editorials, case reports, short communications and other information relevant to cystic fibrosis.
cysticfibrosisjournal.com
Frequency 7 posts / month Domain Authority 35 Get Email Contact

8. Emily's Entourage Blog

Emily's Entourage is a nonprofit organization that raises money and awareness to help find a cure for rare mutations of cystic fibrosis, a genetic disorder that generally affects a person's lungs and digestive system. Our goal is to expedite life-saving treatments and a cure for those with nonsense mutations of CF who are waiting with bated and fading breath.
emilysentourage.org
Facebook Followers 9.4KTwitter Followers 2K Frequency 7 posts / quarter Domain Authority 40 Get Email Contact

9. Continent Chasers

Continent Chasers Wife & Cystic Fibrosis Husband From Poland and Ireland travelling the world 84 countries. Mission is to Visit Each Country on the planet and to highlight Cystic Fibrosis and to show that serious illness doesn't have to stop you following your dreams.
continentchasers.com
Facebook Followers 2KTwitter Followers 1.8KInstagram Followers 1.5K Frequency 2 posts / month Domain Authority 11 Get Email Contact

10. Cystic Fibrosis New Zealand | Creating Better Tomorrows

Cystic Fibrosis New Zealand is the only dedicated organisation caring for the social, emotional and financial needs of the 500 people in NZ who have the condition. CFANZ will optimise quality of life for people with cystic fibrosis and their families; striving for normal life expectancy.
cfnz.org.nz
Facebook Followers 5.5K Frequency 1 post / week Domain Authority 33 Get Email Contact

11. Inspire; to breathe

Blog by Suzanne. Blogging about home, life, living with Cystic Fibrosis, gardening, general love for all things vintage, and reasons why those topics are more interesting than they sound.
suzannebrandsen.wordpress.com
Instagram Followers 588 Frequency 1 post / month Since Jul 2010 Domain Authority 16 Get Email Contact

12. Cody Dieruf Benefit Foundation | Life with Cystic Fibrosis

The Cody Dieruf Benefit Foundation was formed in March of 2006 in honor of Cody Dieruf who passed away from Cystic Fibrosis at 23 years old. Uniting communities and families living with Cystic Fibrosis by raising awareness, providing emotional and financial assistance, encouraging health management, and inspiring life experiences.
breathinisbelievin.org
Facebook Followers 2.1KTwitter Followers 7 Frequency 1 post / day Domain Authority 19 Get Email Contact

13. Tim Wotton | Counting up to 50

Tim Wotton, a Cystic Fibrosis sufferer, has been defying the odds for over 43 years and is sharing his life lessons and experiences. After counting down to the massive 40 milestone in 2011, he is now regularly sharing his trials and tribulations via this blog.
timwotton.wordpress.com
Twitter Followers 881 Frequency 1 post / month Since Jan 2011 Domain Authority 19 Get Email Contact

14. Living life breathlessly

Life is not measured by the number of breaths we take, but by the moments that take our breath away.
livinglifebreathlessly.blogspot.com
Twitter Followers 1 Frequency 2 posts / quarter Since Dec 2007 Domain Authority 18 Get Email Contact

15. CF Happens

I am a military wife, bonus mom and happen to have Cystic Fibrosis (CF).I am not a medical expert and this is just my story.
cfhappens.com
Twitter Followers 32 Frequency 2 posts / month Since Oct 2013 Domain Authority 6 Get Email Contact

16. JAMIEBUG CF CEPACIA LUNG TRANSPLANT

Jamiebug- I have Cystic Fibrosis with Cepacia...Despite being told by almost every hospital in the country that I was not a candidate for a lung transplant due to Cepacia- I didn't give up and I found the ONE place that took a chance on me! I am almost 3 years post transplant and I feel great! You will learn of her thoughts, feelings and how she got through each day.
jamiebug.blogspot.com
Facebook Followers 96Twitter Followers 38 Frequency 1 post / month Since Oct 2007 Domain Authority 12 Get Email Contact

17. CF Stinks

Having CF Stinks, but that doesn't stop me! I'll share with you a little about myself, my life with Cystic Fibrosis and anything else that crosses my mind.
cfstinks.com
Facebook Followers 210 Frequency 1 post / week Since Dec 2010 Domain Authority 5 Get Email Contact

18. TheraPink

I created this blog to raise awareness about CF through sharing my personal experiences and perspective. I hope to dispel some of the myths and provide a basic education on my experiences with Cystic Fibrosis. Blog by Therapink.
therapink.wordpress.com
Twitter Followers 1 Frequency 1 post / month Since Jan 2013 Domain Authority 16 Get Email Contact

19. Breathe Bravely

A blog about my beautiful life living with Cystic Fibrosis: to educate and help promote awareness and understanding associated with CF.Dedicated to sharing my experiences of the good, the bad, the ugly, and the funny, so that all who so eagerly support the fight against CF, will know how much their love and support truly means.
breathebravely.blogspot.com
Twitter Followers 234 Frequency 1 post / quarter Since Apr 2014 Domain Authority 18 Get Email Contact

20. Bright Hope

Strength for today and BRIGHT HOPE for tomorrow! I am a 39-year-old woman with cystic fibrosis. I am also a daugher, sister, wife, mother, teacher and friend. Most importantly I'm God's child. This blog is about my life including the challenges and blessings of living with cystic fibrosis, my faith, my family, and more!
bvbrighthope.wordpress.com
Frequency 4 posts / year Since Apr 2014 Domain Authority 4 Get Email Contact

21. Cystic Fibrosis Federation Australia

Cystic Fibrosis (CF) is the most common, genetically acquired, life-shortening chronic illness affecting young Australians today. Understand the risks, the effects and how to best live your life.
cysticfibrosis.org.au
Facebook Followers 10.2K Domain Authority 45 Get Email Contact

22. Bennett Brinson Gamel: Fighting Cystic Fibrosis

Cystic fibrosis is a life-threatening genetic disease that causes mucus to build up and clog some of the organs in the body, particularly the lungs and pancreas. When mucus clogs the lungs, it can make breathing very difficult. The thick mucus also causes bacteria (or germs) to get stuck in the airways, which causes inflammation (or swelling) and infections that lead to lung damage.
initforbennett.com
Twitter Followers 977 Since Jul 2008 Domain Authority 17 Get Email Contact

23. Claire's Place Foundation

Claire Wineland is founder of Claire's Place Foundation, a 501c3 committed to helping others living with cystic fibrosis like herself. Our mission is to heighten public awareness about Cystic Fibrosis and improve the quality of life for the families it affects by providing education, life skills, inspiration, and positive support.
clairesplacefoundation.org
Facebook Followers 31.5KTwitter Followers 21.5KInstagram Followers 71.8K Since Jul 2011 Domain Authority 48 Get Email Contact

24. Cystic Fibrosis Foundation | CF community Blog

The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care. The CF Community Blog highlights voices from across the CF community, touching on all aspects of life with cystic fibrosis.
cff.org/Blog
Facebook Followers 233.8KTwitter Followers 31.4KInstagram Followers 59.6K Domain Authority 66 Get Email Contact

25. Love to Breathe

Blog by Somer Love, I created Love To Breathe® to educate and raise awareness about Cystic Fibrosis and spread Love whenever I can. I want to change the world... Join my fight!
lovetobreathe.blogspot.com
Facebook Followers 10.2KTwitter Followers 1.6KInstagram Followers 13.3K Since Mar 2008 Domain Authority 14 Get Email Contact

26. Past the Point of No Return

A place for me to record the highs and lows of life on the transplant list, and my new life beyond it. Cystic Fibrosis waited 4years for a double lung transplant and finally recieved the gift of life 10.10.11! All views my own.
tor-pastthepointofnoreturn.blogspot.com
Twitter Followers 3.6K Since May 2005 Domain Authority 20 Get Email Contact

27. Cystic Fibrosis Kids

CF Kids helps by providing equipment, such as nebulisers, which can be an essential part of a CF Kids daily routine at home, but may not be available because of the NHS budget. We also provide exercise equipment and lessons, plus have a number of other services we offer to families in the Portsmouth and Southampton areas.
cfkids.org.uk
Facebook Followers 1.5KInstagram Followers 257 Domain Authority 29 Get Email Contact

28. 66 roses

Blog by Erin Moore, I'm just a mom with 3 wonderful kids, two of which are twins, one of which has Cystic Fibrosis, and I want to share my thoughts. This blog, 66 Roses, is dedicated to finding the cure.
66roses.blogspot.com
Facebook Followers 391Twitter Followers 2.3K Since May 2010 Domain Authority 21 Get Email Contact

29. The Sprog's Life

Blog by George. I started this blog back in January 2012. At first i didnt want this to be a public blog, just some where i could write my thoughts and feelings, sort of a diary and journey through my time getting on and waiting on the transplant list.
thesprogslife.com
Twitter Followers 986 Since Jan 2012 Domain Authority 11 Get Email Contact

30. The Living, Breathing Wendy

A blog about living life to the fullest despite battling Cystic Fibrosis, a genetic lung disease.
thelivingbreathingwendy.com
Facebook Followers 423Twitter Followers 317 Since Mar 2015 Domain Authority 17 Get Email Contact

31. This is Eli

A blog about Eli. A blog about survival - and by that, I mean life! Eli, a boy living cystic fibrosis. We are all about living and ❤️ adventure. I write to shed light on life with CF - and mostly, that means writing about the game of survival called life. We do our best at wellness and nutrition to keep the tribe, and Eli, as healthy as possible.
hithisiseli.com
Twitter Followers 415 Domain Authority 15 Get Email Contact

32. The Unknown Cystic

Leaving a digital record for my family & virtual friends.
unknowncystic.com
Twitter Followers 1.1K Since Feb 2010 Domain Authority 18 Get Email Contact

33. Stanley's Journey Get it off your chest CF

Stanley-Ray was diagnosed with cystic fibrosis at 20 days old, this facebook page is to keep people updated on his progress & to raise funds for CF trust.
getitoffyourchestcf.com
Facebook Followers 815Twitter Followers 349Instagram Followers 271 Since Sep 2016 Domain Authority 7 Get Email Contact

34. IV Solutions blogs

IV Solutions is a full service cystic fibrosis pharmacy that provides home infusion treatments, respiratory inhalation therapies, and specialty CF medications. Since 1986, we've been there to help cystic fibrosis patients along with their families and healthcare providers. We're here to support you through individualized instruction, proactive refill reminders, on-going care coordination.
ivsolutions.com
Facebook Followers 1.8KTwitter Followers 16 Since Dec 2015 Domain Authority 20 Get Email Contact

35. Lucky CF Mom | Possibilities

I have the most amazing good luck. 8 years ago, my world came crashing down when my newborn baby was diagnosed with the genetic disease cystic fibrosis. Today, we feel like the most fortunate family in the world because we have Kalydeco! Now my goal is to work toward more personalized research, to help bring the most effective treatment to each and every person living with CF!
luckycfmom.blogspot.com
Twitter Followers 439 Since Feb 2011 Domain Authority 10 Get Email Contact

36. SaltySouthpaw.com

Why am I the Salty Southpaw? Why I'm Salty - Cystic Fibrosis is a genetic disease where my body has trouble transporting salt. This causes thick mucus in my lungs and body, and my sweat has more salt in it than yours. Southpaw - I am a left-handed baseball player! Baseball and pitching is my passion! Check out my journey with CF.
saltysouthpaw.com
Twitter Followers 9 Since May 2005 Domain Authority 12 Get Email Contact

37. The Race Marked Out For Me | Running with Purpose

I want to write about my cf journey for a bunch of reasons to Connect, Share, Spread awareness and educate, Importance of Exercise, Inspire and encourage, Thankfulness. Embracing life's journey with cystic fibrosis.
theracemarkedoutforme.com
Since Mar 2015 Domain Authority 9 Get Email Contact

38. Behind the Smile of a Cystic

My personal spin with Cystic Fibrosis tips, tricks, positive outlooks. All while making my dreams come true! 'Always Smile. I want to encourage everyone with CF young or old to reach for you dreams, no matter how big or small they can be. As long as you have the right attitude in life, your disease will not bring you down!
behindthesmileofacystic.blogspot.com
Twitter Followers 191 Since Jan 2012 Domain Authority 6 Get Email Contact

39. More Than DNA DNA doesn't define our family

Spreading Awareness about Cystic Fibrosis through sharing our experiences in life! AND finding a CURE for CF!
morethandna.org
Facebook Followers 1.2K Domain Authority 5 Get Email Contact

40. Cystic Fibrosis Guernsey

Cystic Fibrosis Guernsey's aim is to give local families and carers friendly support and advice. Local families who suffer with the issues surrounding CF have little or no way of sharing there ups and downs, their problems, we should help each other.
cysticfibrosis.org.gg
Facebook Followers 178Twitter Followers 156 Domain Authority 13 Get Email Contact

41. Two Salty Boys

Two Salty Boys discusses the ride of a lifetime, having two boys that both have CF. You will read about the rollercoaster of life issues on this blog.
twosaltyboys.blogspot.com
Since Nov 2010 Domain Authority 11 Get Email Contact

42. But You Look So Well

Cystic Fibrosis blogger Helen Roper is waiting for a Double Lung Transplant. 'But You Look So Well' is the usual reply. She doesn't like writing about herself in the third person! Capturing Helen Roper's journey through Cystic fibrosis whilst waiting for a double lung transplant in the UK with trademark dry humor.
butyoulooksowell.com
Instagram Followers 1.6K Frequency 1 post / year Since May 2019 Domain Authority 3 Get Email Contact

43. The Journey of Faith

Desiring to be more like Christ through the trials and joys of this life. On The Journey of Faith you will read about how a mom and family deal with the fact that they have a child with CF. You will read about the fun and happy times as well as trying times.
heleadsus.wordpress.com
Since Feb 2010 Domain Authority 10 Get Email Contact

44. Every Breath Means Hope

This is my life... Cystic Fibrosis. Friends. Family. Music. Animals. Love. Faith. God. Miracles. Dreams. Hope.
everybreathmeanshope.blogspot.com
Twitter Followers 275 Since Sep 2012 Domain Authority 5 Get Email Contact

45. Joyfully Breathing

A CFer's Joyous Journey Through Life. I hope you enjoy reading about how I live my life as CFer! My dream job is to work with other cystic fibrosis patients as a Registered Dietitian Nutritionist (RDN) to help them gain weight so that they can live a longer, healthier life.
joyfullybreathing.wordpress.com
Since Nov 2013 Domain Authority 9 Get Email Contact

46. Inhaling Hope

A blog about mothering despite Cystic Fibrosis.The owner of this blog discusses her journey through life as a wife and mother. However, she has one thing that increases her challenges to these things. She has CF.
hopefulwithcf.blogspot.com
Since Mar 2011 Domain Authority 10 Get Email Contact

47. *Live*Laugh*Love*Breathe*

Colleen's blog is about how she tries to incorporate Live, Love, Laugh into her daily life with CF.
howilivelaughlovewithcf.blogspot.com
Since Jan 2011 Domain Authority 9 Get Email Contact

48. Michael Goodwin Sailing

Hello, and welcome to my occasional blog about sailing adventures with friends. I aim to raise funds for the Cystic Fibrosis Trust through sponsorship, so please consider making a donation to the trust via the link on this website to help us to beat this dreadful disease that limits the lives of so many young people. I do hope you enjoy reading my blog.
michaelgoodwinsailing.blogspot.com
Twitter Followers 16 Domain Authority 12 Get Email Contact

49. I dream of Daisy

Former civil servant Donna Sim has joined the growing trend of parent bloggers. She takes you on a journery sharing inspirational moments, as well as personal accounts written with a heavy heart about her life battling Cystic Fibrosis and her struggles to conceive her miracle baby Daisy.
dream-of-daisy.blogspot.com
Facebook Followers 217Twitter Followers 59Instagram Followers 146 Since Jun 2013 Domain Authority 8 Get Email Contact

50. The So What Life

A blog to inspire members of the CF community to live positively and embrace everything life has to offer. Thriving with a chronic illness, cystic fibrosis.
thesowhatlife.com
Facebook Followers 1.3K Domain Authority 11 Get Email Contact

51. One Breath at a Time - Living with Cystic Fibrosis

A lot of people ask me what made me decide to start writing a blog. I first got the idea after finding out that I might need a transplant. This blog is to raise awareness too, and that has been the biggest blessing I could have asked for. I have people reading my blog and learning about what Cystic Fibrosis is.
kayla-onebreath.blogspot.com
Since Jan 2011 Domain Authority 10 Get Email Contact

52. Illness Inspired Words

The one thing that many don't realize about Cystic Fibrosis is how isolating it can be. We are discouraged to spend any quality time together unless we abide by strict infection control protocols. With that being said, many CF'ers and their families have sort of decided to stay away for one another in a best practices effort to not cross contaminate.
illnessinspiredwords.blogspot.com
Since Jul 2009 Domain Authority 8 Get Email Contact

53. Always Have Hope

Following my life with Cystic fibrosis.
hollyrosanna.blogspot.com
Since Sep 2014 Domain Authority 8 Get Email Contact

54. Cat Boogies Dream | L Word

I like cats, iced coffee and the color purple. I like reading, writing, making soap and thinking about what's next. I am a double lung transplant patient with cystic fibrosis.
catboogiesdream.blogspot.com
Frequency 3 posts / year Since Mar 2010 Domain Authority 8 Get Email Contact

55. Tales of Citrus and Salt

When Life Gives you Lemon is published by a mom of a little guy that has CF. You will read about her daily life as well as how to care for a child with CF.
teamddoes.blogspot.com
Since Aug 2013 Domain Authority 6 Get Email Contact

56. The Transplanted Dad

My life as a father and husband with Cystic Fibrosis and two donated lungs. Here I will share the story of my life with Cystic Fibrosis and the new direction it's headed in following my double lung transplant
transplanteddad.blogspot.com
Facebook Followers 129 Since Apr 2015 Domain Authority 8 Get Email Contact

57. With Every Breath: My Life with Cystic Fibrosis

Once you choose hope, anything's possible. it's also a good way for me to connect with others in the CF community. Others in my situation may find it comforting to see they aren't alone. Blog by jordan.
livewitheverybreath.wordpress.com
Since Oct 2013 Domain Authority 8 Get Email Contact

58. Blue-Eyed Breather

Blue Eyed Breather is a blog about a young lady who strives to live a normal life. Emily blogs about the good and the not so good in her life and about her walk with God.
blue-eyedbreather.blogspot.com
Since Jan 2012 Domain Authority 4 Get Email Contact

59. CF Is Not Forever

Cystic Fibrosis is part of our family now on Earth, but we know that Cystic Fibrosis is not forever, but our family is!
cfisnotforever.blogspot.com
Since Mar 2015 Domain Authority 3 Get Email Contact

60. The Salty Cyster

Life with Cystic Fibrosis and other random thoughts along the way.
thesaltycyster.blogspot.com
Since Apr 2015 Domain Authority 4 Get Email Contact

61. Becoming Chayil

Chayil is a beautiful Hebrew word that translates to strength, courage, and virtue, especially in the face of adversity, borne of closeness to and dependence on our Heavenly Father. My story, found throughout the pages of this blog, is one of redemption, forgiveness, and our Father's incomprehensible, incredible love. My story is my own, but chances are if you're reading this now, it's yours too... Or you want it to be. And it can! I created She is Chayil not only for myself but in hopes of using my storms to uplift and encourage others who might be going through similar things.
becomingchayil.com
Since Jan 2015 Domain Authority 6 Get Email Contact

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