50 Best Cystic Fibrosis Blogs and Websites in 2024

1. Cystic Fibrosis News Today

Blog https://cysticfibrosisnewstoday.com/ + Follow Blog
Cystic Fibrosis News Today is a digital news publication dedicated to offering comprehensive daily news coverage of CF. Read the latest Cystic Fibrosis news and articles. Stay informed about approved therapies, new medications and developments to treat CF.MORE Email ****@cysticfibrosisnewstoday.com
Facebook Followers 22.7KTwitter Followers 5.2KInstagram Followers 8.9K Frequency 6 posts/week Since Apr 2014 Domain Authority 51 Read Now Get Email Contact Get Influential Bloggers ContactsGet access to 250k active Bloggers in 1500 niche categories.Get targeted media contact list in your niche at your fingertips so you can focus on running your campaign.Email us the type of bloggers you want to reach out for your marketing campaign at anuj@feedspot.com Copy email. We'll share blogger's data in an Excel or CSV format.Email us

2. Cystic Fibrosis Canada Blog

Blog http://www.cysticfibrosis.ca/blog/ + Follow Blog
Cystic Fibrosis Canada is a national charitable not-for-profit corporation committed to finding a cure for cystic fibrosis (CF). We invest more in life-saving CF research and care than any other non-governmental agency in Canada.MORE Email ****@cysticfibrosis.ca
Facebook Followers 19.2KTwitter Followers 6.3KInstagram Followers 6.9K Frequency 1 post/week Since Apr 2016 Domain Authority 53 Read Now Get Email Contact

3. Journal of Cystic Fibrosis

Blog https://www.cysticfibrosisjournal.com/ + Follow Blog
The Journal of Cystic Fibrosis is the official journal of the European Cystic Fibrosis Society. The journal is devoted to promoting the research and treatment of cystic fibrosis. To this end the journal publishes original scientific articles, editorials, case reports, short communications and other information relevant to cystic fibrosis.MORE Email ****@health.qld.gov.au
Frequency 4 posts/week Domain Authority 35 Read Now Get Email Contact

4. Emily's Entourage Blog

Blog https://www.emilysentourage.org/blog/ + Follow Blog
Emily's Entourage is a nonprofit organization that raises money and awareness to help find a cure for rare mutations of cystic fibrosis, a genetic disorder that generally affects a person's lungs and digestive system. Our goal is to expedite life-saving treatments and a cure for those with nonsense mutations of CF who are waiting with bated and fading breath.MORE Email ****@emilysentourage.org
Facebook Followers 9.4KTwitter Followers 2K Frequency 1 post/week Domain Authority 41 Read Now Get Email Contact

5. Living life breathlessly

Blog http://livinglifebreathlessly.blogspot.com/ + Follow Blog
Life is not measured by the number of breaths we take, but by the moments that take our breath away.
Email ****@gmail.com
Twitter Followers 1 Frequency 3 posts/year Since Dec 2007 Domain Authority 20 Read Now Get Email Contact

6. Continent Chasers

Blog https://www.continentchasers.com/blogs/ + Follow Blog
Continent Chasers Wife & Cystic Fibrosis Husband From Poland and Ireland travelling the world 84 countries. Mission is to Visit Each Country on the planet and to highlight Cystic Fibrosis and to show that serious illness doesn't have to stop you following your dreams.MORE Email ****@gmail.com
Facebook Followers 2KTwitter Followers 1.8KInstagram Followers 1.5K Frequency 4 posts/year Domain Authority 14 Read Now Get Email Contact

7. Cystic Fibrosis New Zealand

Blog https://www.cfnz.org.nz/ + Follow Blog
Cystic Fibrosis New Zealand is the only dedicated organisation caring for the social, emotional and financial needs of the 500 people in NZ who have the condition. CFANZ will optimise quality of life for people with cystic fibrosis and their families; striving for normal life expectancy.MORE Email ****@cfnz.org.nz
Facebook Followers 5.9K Frequency 2 posts/month Domain Authority 35 Read Now Get Email Contact

8. Cody Dieruf Benefit Foundation

Blog https://breathinisbelievin.org/ + Follow Blog
The Cody Dieruf Benefit Foundation was formed in March of 2006 in honor of Cody Dieruf who passed away from Cystic Fibrosis at 23 years old. Uniting communities and families living with Cystic Fibrosis by raising awareness, providing emotional and financial assistance, encouraging health management, and inspiring life experiences.MORE Email ****@breathinisbelievin.org
Facebook Followers 2.1KTwitter Followers 7 Frequency 1 post/week Domain Authority 19 Read Now Get Email Contact

9. Tim Wotton

Blog https://timwotton.wordpress.com/ + Follow Blog
Tim Wotton, a Cystic Fibrosis sufferer, has been defying the odds for over 43 years and is sharing his life lessons and experiences. After counting down to the massive 40 milestone in 2011, he is now regularly sharing his trials and tribulations via this blog.MORE Email ****@hotmail.com
Twitter Followers 881 Frequency 1 post/quarter Since Jan 2011 Domain Authority 19 Read Now Get Email Contact

10. CF Happens

Blog https://cfhappens.com/ + Follow Blog
I am a military wife, bonus mom and happen to have Cystic Fibrosis (CF).I am not a medical expert and this is just my story.
Email ****@yahoo.com
Twitter Followers 32 Frequency 1 post/week Since Oct 2013 Domain Authority 6 Read Now Get Email Contact

11. Breathe Bravely

Blog https://breathebravely.blogspot.com/ + Follow Blog
A blog about my beautiful life living with Cystic Fibrosis: to educate and help promote awareness and understanding associated with CF.Dedicated to sharing my experiences of the good, the bad, the ugly, and the funny, so that all who so eagerly support the fight against CF, will know how much their love and support truly means.MORE Twitter Followers 223 Frequency 1 post/week Since Apr 2014 Domain Authority 18 Read Now Get Email Contact

12. Cat Boogies Dream

Blog http://catboogiesdream.blogspot.com/ + Follow Blog
I like cats, iced coffee and the color purple. I like reading, writing, making soap and thinking about what's next. I am a double lung transplant patient with cystic fibrosis.
Frequency 1 post/week Since Mar 2010 Domain Authority 7 Read Now Get Email Contact

13. Bright Hope

Blog https://bvbrighthope.wordpress.com/ + Follow Blog
Strength for today and BRIGHT HOPE for tomorrow! I am a 39-year-old woman with cystic fibrosis. I am also a daugher, sister, wife, mother, teacher and friend. Most importantly I'm God's child. This blog is about my life including the challenges and blessings of living with cystic fibrosis, my faith, my family, and more!MORE Email ****@gmail.com
Frequency 1 post/quarter Since Apr 2014 Domain Authority 4 Read Now Get Email Contact

14. CF Roundtable Blog

Blog https://www.cfroundtable.com/blog-1 + Follow Blog
The purpose of USACFA is to provide a source of information for CF adults regarding the basis, nature and progression of the disease, as well as the latest treatments and research to fight it. It also offers a forum for CF adults to communicate with each other. Our many columnists provide insights on a wide variety of subjects related to CF.MORE Email ****@usacfa.org
Facebook Followers 2.3KTwitter Followers 971 Frequency 4 posts/year Since Mar 2011 Domain Authority 24 Read Now Get Email Contact

15. Cystic Fibrosis s Blog

Blog https://cysticfibrosis.com/blog/ + Follow Blog
A worldwide Cystic Fibrosis community combining cultures, nationalities and age groups. The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high-quality, specialized care.MORE Email ****@cff.org
Facebook Followers 239.7KTwitter Followers 31.3K Frequency 1 post/year Domain Authority 34 Read Now Get Email Contact

16. Cystic Fibrosis Federation Australia

Blog https://www.cysticfibrosis.org.au/ + Follow Blog
Cystic Fibrosis (CF) is the most common, genetically acquired, life-shortening chronic illness affecting young Australians today. Understand the risks, the effects and how to best live your life.MORE Email ****@cfa.org.au
Facebook Followers 11.6K Domain Authority 45 Read Now Get Email Contact

17. Claire's Place Foundation Blog

Blog https://clairesplacefoundation.org/blog/ + Follow Blog
Claire Wineland is founder of Claire's Place Foundation, a 501c3 committed to helping others living with cystic fibrosis like herself. Our mission is to heighten public awareness about Cystic Fibrosis and improve the quality of life for the families it affects by providing education, life skills, inspiration, and positive support.MORE Email ****@clairesplacefoundation.org
Facebook Followers 31.5KTwitter Followers 21.5KInstagram Followers 97.5K Since Jul 2011 Domain Authority 48 Read Now Get Email Contact

18. Cystic Fibrosis Foundation Blog

Blog https://www.cff.org/Blog/ + Follow Blog
The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care. The CF Community Blog highlights voices from across the CF community, touching on all aspects of life with cystic fibrosis.MORE Email ****@cff.org
Facebook Followers 239.7KTwitter Followers 31.3KInstagram Followers 61.9K Domain Authority 66 Read Now Get Email Contact

19. Love to Breathe

Blog http://lovetobreathe.blogspot.com/ + Follow Blog
Blog by Somer Love, I created Love To Breathe® to educate and raise awareness about Cystic Fibrosis and spread Love whenever I can. I want to change the world... Join my fight!
Email ****@lovetobreathe.com
Facebook Followers 10.2KTwitter Followers 1.6KInstagram Followers 13.3K Since Mar 2008 Domain Authority 13 Read Now Get Email Contact

20. Past the Point of No Return

Blog http://tor-pastthepointofnoreturn.blogspot.com/ + Follow Blog
A place for me to record the highs and lows of life on the transplant list, and my new life beyond it. Cystic Fibrosis waited 4years for a double lung transplant and finally recieved the gift of life 10.10.11! All views my own.MORE Email ****@gmail.com
Twitter Followers 3.6K Since May 2005 Domain Authority 19 Read Now Get Email Contact

21. Cystic Fibrosis Kids

Blog https://www.cfkids.org.uk/ + Follow Blog
CF Kids helps by providing equipment, such as nebulisers, which can be an essential part of a CF Kids daily routine at home, but may not be available because of the NHS budget. We also provide exercise equipment and lessons, plus have a number of other services we offer to families in the Portsmouth and Southampton areas.MORE Email ****@cfkids.org.uk
Facebook Followers 1.5KInstagram Followers 270 Domain Authority 28 Read Now Get Email Contact

22. 66 roses

Blog http://66roses.blogspot.com/ + Follow Blog
Blog by Erin Moore, I'm just a mom with 3 wonderful kids, two of which are twins, one of which has Cystic Fibrosis, and I want to share my thoughts. This blog, 66 Roses, is dedicated to finding the cure.MORE Email ****@gmail.com
Facebook Followers 391Twitter Followers 2.3K Since May 2010 Domain Authority 25 Read Now Get Email Contact

23. Inspire; to breathe

Blog https://suzannebrandsen.wordpress.com/ + Follow Blog
Blog by Suzanne. Blogging about home, life, living with Cystic Fibrosis, gardening, general love for all things vintage, and reasons why those topics are more interesting than they sound.
Instagram Followers 588 Frequency 1 post/year Since Jul 2010 Domain Authority 16 Read Now Get Email Contact

24. The Living, Breathing Wendy

Blog https://www.thelivingbreathingwendy.com/ + Follow Blog
A blog about living life to the fullest despite battling Cystic Fibrosis, a genetic lung disease.
Email ****@gmail.com
Facebook Followers 423Twitter Followers 317 Since Mar 2015 Domain Authority 17 Read Now Get Email Contact

25. The Unknown Cystic

Blog https://unknowncystic.com/ + Follow Blog
Leaving a digital record for my family & virtual friends.
Twitter Followers 1.1K Since Feb 2010 Domain Authority 18 Read Now Get Email Contact

26. IV Solutions blogs

Blog https://www.maxor.com/news/ + Follow Blog
IV Solutions is a full service cystic fibrosis pharmacy that provides home infusion treatments, respiratory inhalation therapies, and specialty CF medications. Since 1986, we've been there to help cystic fibrosis patients along with their families and healthcare providers. We're here to support you through individualized instruction, proactive refill reminders, on-going care coordination.MORE Email ****@maxor.com
Facebook Followers 2.3KTwitter Followers 16 Since Dec 2015 Domain Authority 34 Read Now Get Email Contact

27. Lucky CF Mom

Blog http://luckycfmom.blogspot.com/ + Follow Blog
I have the most amazing good luck. 8 years ago, my world came crashing down when my newborn baby was diagnosed with the genetic disease cystic fibrosis. Today, we feel like the most fortunate family in the world because we have Kalydeco! Now my goal is to work toward more personalized research, to help bring the most effective treatment to each and every person living with CF!MORE Twitter Followers 439 Since Feb 2011 Domain Authority 10 Read Now Get Email Contact

28. JAMIEBUG CF CEPACIA LUNG TRANSPLANT

Blog http://jamiebug.blogspot.com/ + Follow Blog
Jamiebug- I have Cystic Fibrosis with Cepacia...Despite being told by almost every hospital in the country that I was not a candidate for a lung transplant due to Cepacia- I didn't give up and I found the ONE place that took a chance on me! I am almost 3 years post transplant and I feel great! You will learn of her thoughts, feelings and how she got through each day.MORE Email ****@gmail.com
Facebook Followers 96Twitter Followers 38 Frequency 1 post/year Since Oct 2007 Domain Authority 12 Read Now Get Email Contact

29. CF Stinks

Blog http://www.cfstinks.com/ + Follow Blog
Having CF Stinks, but that doesn't stop me! I'll share with you a little about myself, my life with Cystic Fibrosis and anything else that crosses my mind.
Facebook Followers 210 Frequency 1 post/year Since Dec 2010 Domain Authority 11 Read Now Get Email Contact

30. SaltySouthpaw.com

Blog http://www.saltysouthpaw.com/ + Follow Blog
Why am I the Salty Southpaw? Why I'm Salty - Cystic Fibrosis is a genetic disease where my body has trouble transporting salt. This causes thick mucus in my lungs and body, and my sweat has more salt in it than yours. Southpaw - I am a left-handed baseball player! Baseball and pitching is my passion! Check out my journey with CF.MORE Twitter Followers 9 Since May 2005 Domain Authority 9 Read Now Get Email Contact

31. Behind the Smile of a Cystic

Blog http://behindthesmileofacystic.blogspot.com/ + Follow Blog
My personal spin with Cystic Fibrosis tips, tricks, positive outlooks. All while making my dreams come true! 'Always Smile. I want to encourage everyone with CF young or old to reach for you dreams, no matter how big or small they can be. As long as you have the right attitude in life, your disease will not bring you down!MORE Email ****@gmail.com
Twitter Followers 191 Since Jan 2012 Domain Authority 7 Read Now Get Email Contact

32. Cystic Fibrosis Guernsey Blog

Blog https://cysticfibrosis.org.gg/blog/ + Follow Blog
Cystic Fibrosis Guernsey's aim is to give local families and carers friendly support and advice. Local families who suffer with the issues surrounding CF have little or no way of sharing there ups and downs, their problems, we should help each other.MORE Email ****@Cysticfibrosis.org.gg
Facebook Followers 178Twitter Followers 156 Domain Authority 16 Read Now Get Email Contact

33. Two Salty Boys

Blog http://twosaltyboys.blogspot.com/ + Follow Blog
Two Salty Boys discusses the ride of a lifetime, having two boys that both have CF. You will read about the rollercoaster of life issues on this blog.
Since Nov 2010 Domain Authority 13 Read Now Get Email Contact

34. The Journey of Faith

Blog https://heleadsus.wordpress.com/ + Follow Blog
Desiring to be more like Christ through the trials and joys of this life. On The Journey of Faith you will read about how a mom and family deal with the fact that they have a child with CF. You will read about the fun and happy times as well as trying times.MORE Since Feb 2010 Domain Authority 10 Read Now Get Email Contact

35. But You Look So Well

Blog https://www.butyoulooksowell.com/ + Follow Blog
Cystic Fibrosis blogger Helen Roper is waiting for a Double Lung Transplant. 'But You Look So Well' is the usual reply. She doesn't like writing about herself in the third person! Capturing Helen Roper's journey through Cystic fibrosis whilst waiting for a double lung transplant in the UK with trademark dry humor.MORE Email ****@butyoulooksowell.com
Instagram Followers 1.6K Since May 2019 Domain Authority 8 Read Now Get Email Contact

36. Every Breath Means Hope

Blog http://everybreathmeanshope.blogspot.com/ + Follow Blog
This is my life... Cystic Fibrosis. Friends. Family. Music. Animals. Love. Faith. God. Miracles. Dreams. Hope.
Twitter Followers 275 Since Sep 2012 Domain Authority 6 Read Now Get Email Contact

37. *Live*Laugh*Love*Breathe*

Blog http://howilivelaughlovewithcf.blogspot.com/ + Follow Blog
Colleen's blog is about how she tries to incorporate Live, Love, Laugh into her daily life with CF.
Since Jan 2011 Domain Authority 11 Read Now Get Email Contact

38. Inhaling Hope

Blog http://hopefulwithcf.blogspot.com/ + Follow Blog
A blog about mothering despite Cystic Fibrosis.The owner of this blog discusses her journey through life as a wife and mother. However, she has one thing that increases her challenges to these things. She has CF.MORE Email ****@gmail.com
Since Mar 2011 Domain Authority 8 Read Now Get Email Contact

39. Joyfully Breathing

Blog https://joyfullybreathing.wordpress.com/ + Follow Blog
A CFer's Joyous Journey Through Life. I hope you enjoy reading about how I live my life as CFer! My dream job is to work with other cystic fibrosis patients as a Registered Dietitian Nutritionist (RDN) to help them gain weight so that they can live a longer, healthier life.MORE Since Nov 2013 Domain Authority 9 Read Now Get Email Contact

40. I dream of Daisy

Blog https://dream-of-daisy.blogspot.com/ + Follow Blog
Former civil servant Donna Sim has joined the growing trend of parent bloggers. She takes you on a journery sharing inspirational moments, as well as personal accounts written with a heavy heart about her life battling Cystic Fibrosis and her struggles to conceive her miracle baby Daisy.MORE Facebook Followers 217Twitter Followers 59Instagram Followers 146 Since Jun 2013 Domain Authority 6 Read Now Get Email Contact

41. The So What Life

Blog http://thesowhatlife.com/blog/ + Follow Blog
A blog to inspire members of the CF community to live positively and embrace everything life has to offer. Thriving with a chronic illness, cystic fibrosis.
Email ****@thesowhatlife.com
Facebook Followers 1.3K Domain Authority 11 Read Now Get Email Contact

42. One Breath at a Time - Living with Cystic Fibrosis

Blog http://kayla-onebreath.blogspot.com/ + Follow Blog
A lot of people ask me what made me decide to start writing a blog. I first got the idea after finding out that I might need a transplant. This blog is to raise awareness too, and that has been the biggest blessing I could have asked for. I have people reading my blog and learning about what Cystic Fibrosis is.MORE Since Jan 2011 Domain Authority 10 Read Now Get Email Contact

43. Always Have Hope

Blog http://hollyrosanna.blogspot.com/ + Follow Blog
Following my life with Cystic fibrosis.
Since Sep 2014 Domain Authority 6 Read Now Get Email Contact

44. Illness Inspired Words

Blog http://illnessinspiredwords.blogspot.com/ + Follow Blog
The one thing that many don't realize about Cystic Fibrosis is how isolating it can be. We are discouraged to spend any quality time together unless we abide by strict infection control protocols. With that being said, many CF'ers and their families have sort of decided to stay away for one another in a best practices effort to not cross contaminate.MORE Email ****@gmail.com
Since Jul 2009 Domain Authority 9 Read Now Get Email Contact

45. The Transplanted Dad

Blog http://transplanteddad.blogspot.com/ + Follow Blog
My life as a father and husband with Cystic Fibrosis and two donated lungs. Here I will share the story of my life with Cystic Fibrosis and the new direction it's headed in following my double lung transplantMORE Facebook Followers 129 Since Apr 2015 Domain Authority 7 Read Now Get Email Contact

46. With Every Breath: My Life with Cystic Fibrosis

Blog https://livewitheverybreath.wordpress.com/ + Follow Blog
Once you choose hope, anything's possible. it's also a good way for me to connect with others in the CF community. Others in my situation may find it comforting to see they aren't alone. Blog by jordan.MORE Since Oct 2013 Domain Authority 8 Read Now Get Email Contact

47. Tales of Citrus and Salt

Blog http://teamddoes.blogspot.com/ + Follow Blog
When Life Gives you Lemon is published by a mom of a little guy that has CF. You will read about her daily life as well as how to care for a child with CF.
Since Aug 2013 Domain Authority 7 Read Now Get Email Contact

48. CF Is Not Forever

Blog http://cfisnotforever.blogspot.com/ + Follow Blog
Cystic Fibrosis is part of our family now on Earth, but we know that Cystic Fibrosis is not forever, but our family is!
Since Mar 2015 Domain Authority 3 Read Now Get Email Contact

49. Blue-Eyed Breather

Blog http://blue-eyedbreather.blogspot.com/ + Follow Blog
Blue Eyed Breather is a blog about a young lady who strives to live a normal life. Emily blogs about the good and the not so good in her life and about her walk with God.
Since Jan 2012 Domain Authority 6 Read Now Get Email Contact

50. The Salty Cyster

Blog http://thesaltycyster.blogspot.com/ + Follow Blog
Life with Cystic Fibrosis and other random thoughts along the way.
Since Apr 2015 Domain Authority 5 Read Now Get Email Contact

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