50 Best Cystic Fibrosis Blogs and Websites in 2024

1. Cystic Fibrosis News Today

Cystic Fibrosis News Today is a digital news publication dedicated to offering comprehensive daily news coverage of CF. Read the latest Cystic Fibrosis news and articles. Stay informed about approved therapies, new medications and developments to treat CF.
Blog cysticfibrosisnewstoday.com
Facebook Followers 22.7KTwitter Followers 5.2KInstagram Followers 8.9K Frequency 6 posts/week Since Apr 2014 Domain Authority 51 Get Email Contact Get Influential Bloggers ContactsGet access to 250k active Bloggers in 1500 niche categories.Get targeted media contact list in your niche at your fingertips so you can focus on running your campaign.Email us the type of bloggers you want to reach out for your marketing campaign at anuj@feedspot.com Copy email. We'll share blogger's data in an Excel or CSV format.Email us

2. Cystic Fibrosis Canada Blog

Cystic Fibrosis Canada is a national charitable not-for-profit corporation committed to finding a cure for cystic fibrosis (CF). We invest more in life-saving CF research and care than any other non-governmental agency in Canada.
Blog cysticfibrosis.ca
Facebook Followers 19.2KTwitter Followers 6.3KInstagram Followers 6.9K Frequency 1 post/week Since Apr 2016 Domain Authority 53 Get Email Contact

3. Journal of Cystic Fibrosis

The Journal of Cystic Fibrosis is the official journal of the European Cystic Fibrosis Society. The journal is devoted to promoting the research and treatment of cystic fibrosis. To this end the journal publishes original scientific articles, editorials, case reports, short communications and other information relevant to cystic fibrosis.
Blog cysticfibrosisjournal.com
Frequency 4 posts/week Domain Authority 35 Get Email Contact

4. Emily's Entourage Blog

Emily's Entourage is a nonprofit organization that raises money and awareness to help find a cure for rare mutations of cystic fibrosis, a genetic disorder that generally affects a person's lungs and digestive system. Our goal is to expedite life-saving treatments and a cure for those with nonsense mutations of CF who are waiting with bated and fading breath.
Blog emilysentourage.org
Facebook Followers 9.4KTwitter Followers 2K Frequency 1 post/week Domain Authority 41 Get Email Contact

5. Living life breathlessly

Life is not measured by the number of breaths we take, but by the moments that take our breath away.
Blog livinglifebreathlessly.blogspot.com
Twitter Followers 1 Frequency 3 posts/year Since Dec 2007 Domain Authority 20 Get Email Contact

6. Cystic Fibrosis New Zealand | Creating Better Tomorrows

Cystic Fibrosis New Zealand is the only dedicated organisation caring for the social, emotional and financial needs of the 500 people in NZ who have the condition. CFANZ will optimise quality of life for people with cystic fibrosis and their families; striving for normal life expectancy.
Blog cfnz.org.nz
Facebook Followers 5.5K Frequency 2 posts/month Domain Authority 35 Get Email Contact

7. Continent Chasers

Continent Chasers Wife & Cystic Fibrosis Husband From Poland and Ireland travelling the world 84 countries. Mission is to Visit Each Country on the planet and to highlight Cystic Fibrosis and to show that serious illness doesn't have to stop you following your dreams.
Blog continentchasers.com
Facebook Followers 2KTwitter Followers 1.8KInstagram Followers 1.5K Frequency 4 posts/year Domain Authority 14 Get Email Contact

8. Cody Dieruf Benefit Foundation | Life with Cystic Fibrosis

The Cody Dieruf Benefit Foundation was formed in March of 2006 in honor of Cody Dieruf who passed away from Cystic Fibrosis at 23 years old. Uniting communities and families living with Cystic Fibrosis by raising awareness, providing emotional and financial assistance, encouraging health management, and inspiring life experiences.
Blog breathinisbelievin.org
Facebook Followers 2.1KTwitter Followers 7 Frequency 1 post/week Domain Authority 19 Get Email Contact

9. Tim Wotton | Counting up to 50

Tim Wotton, a Cystic Fibrosis sufferer, has been defying the odds for over 43 years and is sharing his life lessons and experiences. After counting down to the massive 40 milestone in 2011, he is now regularly sharing his trials and tribulations via this blog.
Blog timwotton.wordpress.com
Twitter Followers 881 Frequency 1 post/quarter Since Jan 2011 Domain Authority 19 Get Email Contact

10. CF Happens

I am a military wife, bonus mom and happen to have Cystic Fibrosis (CF).I am not a medical expert and this is just my story.
Blog cfhappens.com
Twitter Followers 32 Frequency 1 post/week Since Oct 2013 Domain Authority 6 Get Email Contact

11. Breathe Bravely

A blog about my beautiful life living with Cystic Fibrosis: to educate and help promote awareness and understanding associated with CF.Dedicated to sharing my experiences of the good, the bad, the ugly, and the funny, so that all who so eagerly support the fight against CF, will know how much their love and support truly means.
Blog breathebravely.blogspot.com
Twitter Followers 234 Frequency 1 post/week Since Apr 2014 Domain Authority 18 Get Email Contact

12. Cat Boogies Dream | L Word

I like cats, iced coffee and the color purple. I like reading, writing, making soap and thinking about what's next. I am a double lung transplant patient with cystic fibrosis.
Blog catboogiesdream.blogspot.com
Frequency 1 post/week Since Mar 2010 Domain Authority 7 Get Email Contact

13. Bright Hope

Strength for today and BRIGHT HOPE for tomorrow! I am a 39-year-old woman with cystic fibrosis. I am also a daugher, sister, wife, mother, teacher and friend. Most importantly I'm God's child. This blog is about my life including the challenges and blessings of living with cystic fibrosis, my faith, my family, and more!
Blog bvbrighthope.wordpress.com
Frequency 1 post/quarter Since Apr 2014 Domain Authority 4 Get Email Contact

14. CF Roundtable Blog

The purpose of USACFA is to provide a source of information for CF adults regarding the basis, nature and progression of the disease, as well as the latest treatments and research to fight it. It also offers a forum for CF adults to communicate with each other. Our many columnists provide insights on a wide variety of subjects related to CF.
Blog cfroundtable.com
Facebook Followers 2.3KTwitter Followers 971 Frequency 4 posts/year Since Mar 2011 Domain Authority 24 Get Email Contact

15. Cystic Fibrosis Blogs

A worldwide Cystic Fibrosis community combining cultures, nationalities and age groups. The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high-quality, specialized care.
Blog cysticfibrosis.com
Facebook Followers 233.8KTwitter Followers 31.3K Frequency 1 post/year Domain Authority 34 Get Email Contact

16. Cystic Fibrosis Federation Australia

Cystic Fibrosis (CF) is the most common, genetically acquired, life-shortening chronic illness affecting young Australians today. Understand the risks, the effects and how to best live your life.
Blog cysticfibrosis.org.au
Facebook Followers 10.2K Domain Authority 45 Get Email Contact

17. Claire's Place Foundation

Claire Wineland is founder of Claire's Place Foundation, a 501c3 committed to helping others living with cystic fibrosis like herself. Our mission is to heighten public awareness about Cystic Fibrosis and improve the quality of life for the families it affects by providing education, life skills, inspiration, and positive support.
Blog clairesplacefoundation.org
Facebook Followers 31.5KTwitter Followers 21.5KInstagram Followers 97.8K Since Jul 2011 Domain Authority 48 Get Email Contact

18. Cystic Fibrosis Foundation | CF community Blog

The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care. The CF Community Blog highlights voices from across the CF community, touching on all aspects of life with cystic fibrosis.
Blog cff.org/Blog
Facebook Followers 233.8KTwitter Followers 31.3KInstagram Followers 61.8K Domain Authority 66 Get Email Contact

19. Love to Breathe

Blog by Somer Love, I created Love To Breathe® to educate and raise awareness about Cystic Fibrosis and spread Love whenever I can. I want to change the world... Join my fight!
Blog lovetobreathe.blogspot.com
Facebook Followers 10.2KTwitter Followers 1.6KInstagram Followers 13.3K Since Mar 2008 Domain Authority 13 Get Email Contact

20. Past the Point of No Return

A place for me to record the highs and lows of life on the transplant list, and my new life beyond it. Cystic Fibrosis waited 4years for a double lung transplant and finally recieved the gift of life 10.10.11! All views my own.
Blog tor-pastthepointofnoreturn.blogspot.com
Twitter Followers 3.6K Since May 2005 Domain Authority 19 Get Email Contact

21. Cystic Fibrosis Kids

CF Kids helps by providing equipment, such as nebulisers, which can be an essential part of a CF Kids daily routine at home, but may not be available because of the NHS budget. We also provide exercise equipment and lessons, plus have a number of other services we offer to families in the Portsmouth and Southampton areas.
Blog cfkids.org.uk
Facebook Followers 1.5KInstagram Followers 268 Domain Authority 28 Get Email Contact

22. 66 roses

Blog by Erin Moore, I'm just a mom with 3 wonderful kids, two of which are twins, one of which has Cystic Fibrosis, and I want to share my thoughts. This blog, 66 Roses, is dedicated to finding the cure.
Blog 66roses.blogspot.com
Facebook Followers 391Twitter Followers 2.3K Since May 2010 Domain Authority 25 Get Email Contact

23. Inspire; to breathe

Blog by Suzanne. Blogging about home, life, living with Cystic Fibrosis, gardening, general love for all things vintage, and reasons why those topics are more interesting than they sound.
Blog suzannebrandsen.wordpress.com
Instagram Followers 588 Frequency 1 post/year Since Jul 2010 Domain Authority 16 Get Email Contact

24. The Living, Breathing Wendy

A blog about living life to the fullest despite battling Cystic Fibrosis, a genetic lung disease.
Blog thelivingbreathingwendy.com
Facebook Followers 423Twitter Followers 317 Since Mar 2015 Domain Authority 17 Get Email Contact

25. The Unknown Cystic

Leaving a digital record for my family & virtual friends.
Blog unknowncystic.com
Twitter Followers 1.1K Since Feb 2010 Domain Authority 18 Get Email Contact

26. IV Solutions blogs

IV Solutions is a full service cystic fibrosis pharmacy that provides home infusion treatments, respiratory inhalation therapies, and specialty CF medications. Since 1986, we've been there to help cystic fibrosis patients along with their families and healthcare providers. We're here to support you through individualized instruction, proactive refill reminders, on-going care coordination.
Blog maxor.com/news
Facebook Followers 1.8KTwitter Followers 16 Since Dec 2015 Domain Authority 34 Get Email Contact

27. Lucky CF Mom | Possibilities

I have the most amazing good luck. 8 years ago, my world came crashing down when my newborn baby was diagnosed with the genetic disease cystic fibrosis. Today, we feel like the most fortunate family in the world because we have Kalydeco! Now my goal is to work toward more personalized research, to help bring the most effective treatment to each and every person living with CF!
Blog luckycfmom.blogspot.com
Twitter Followers 439 Since Feb 2011 Domain Authority 10 Get Email Contact

28. JAMIEBUG CF CEPACIA LUNG TRANSPLANT

Jamiebug- I have Cystic Fibrosis with Cepacia...Despite being told by almost every hospital in the country that I was not a candidate for a lung transplant due to Cepacia- I didn't give up and I found the ONE place that took a chance on me! I am almost 3 years post transplant and I feel great! You will learn of her thoughts, feelings and how she got through each day.
Blog jamiebug.blogspot.com
Facebook Followers 96Twitter Followers 38 Frequency 1 post/year Since Oct 2007 Domain Authority 12 Get Email Contact

29. CF Stinks

Having CF Stinks, but that doesn't stop me! I'll share with you a little about myself, my life with Cystic Fibrosis and anything else that crosses my mind.
Blog cfstinks.com
Facebook Followers 210 Frequency 1 post/year Since Dec 2010 Domain Authority 11 Get Email Contact

30. SaltySouthpaw.com

Why am I the Salty Southpaw? Why I'm Salty - Cystic Fibrosis is a genetic disease where my body has trouble transporting salt. This causes thick mucus in my lungs and body, and my sweat has more salt in it than yours. Southpaw - I am a left-handed baseball player! Baseball and pitching is my passion! Check out my journey with CF.
Blog saltysouthpaw.com
Twitter Followers 9 Since May 2005 Domain Authority 9 Get Email Contact